Pending Bill” “Aid in Dying for the Terminally Ill Act,”
The Assembly Judiciary
Committee reports favorably and with committee amendments Assembly Bill No.
1504.
As amended by the committee, this
bill establishes the “Aid in Dying for the Terminally Ill Act,” which will
allow an adult New Jersey resident, who has the capacity to make health care
decisions and who has been determined by that individual’s attending and
consulting physicians to be terminally ill, to obtain medication that the
patient may self-administer to terminate the patient’s life. Under the
bill, “terminally ill” is defined to mean the patient is in the terminal stage
of an irreversibly fatal illness, disease, or condition with a prognosis, based
upon reasonable medical certainty, of a life expectancy of six months or less.
In order for a terminally ill
patient to receive a prescription for medication under the bill, the patient is
required to make two oral requests and one written request to the patient’s
attending physician for the medication. The bill requires at least 15 days
to elapse between the initial oral request and the second oral request, and
between the patient’s initial oral request and the writing of a prescription
for the medication. The patient may submit the written request for
medication either when the patient makes the initial oral request, or at any
time thereafter, but a minimum of 48 hours are to elapse between the attending
physician’s receipt of the written request and the writing of a prescription
for medication.
When a patient makes an initial
oral request for medication under the bill’s provisions, the attending
physician is required to provide the patient with information about the risks,
probable results, and alternatives to taking the medication; recommend that the
patient participate in a consultation concerning concurrent or additional
treatment opportunities, palliative care, comfort care, hospice care, and pain
control options; and refer the patient to a health care professional who is
qualified to discuss those alternative care and treatment options. The patient
may choose, but is not required, to participate in such consultation. The
attending physician is also required to recommend that the patient notify the
patient’s next of kin of the request, but medication may not be denied if a patient
declines, or is unable to, provide this notification.
The attending physician is required
to refer the patient to a consulting physician for the purpose of obtaining
confirmation of the attending physician’s diagnosis. Both the attending
physician and the consulting physician are required to verify that the patient
has made an informed decision when requesting medication under the bill.
When the patient makes the second oral request, the attending physician is to
offer the patient an opportunity to rescind the request. In addition, the
attending physician is required to notify the patient that a request may be
rescinded at any time and in any manner, regardless of the patient’s mental
state.
A patient may make a written
request for medication, in accordance with the bill’s provisions, so long as
the patient: is an adult resident of New Jersey, as demonstrated through
documentation submitted to the attending physician; is capable; is terminally
ill, as determined by the attending physician and confirmed by the consulting
physician; and has voluntarily expressed a wish to receive a prescription for
the medication.
The bill requires a valid written
request for medication to be in a form that is substantially similar to the
form set forth in the bill. The bill requires the written request to be
signed and dated by the patient and witnessed by at least two individuals who
attest, in the patient’s presence, that, to the best of their knowledge and
belief, the patient is capable and is acting voluntarily.
The bill requires at least one of
the witnesses to be a person who is not:
(1) a relative of the
qualified patient by blood, marriage, or adoption;
(2) at the time the request
is signed, entitled to any portion of the patient’s estate upon the patient’s
death;
(3) an owner, operator, or
employee of a health care facility, other than a long term care facility, where
the patient is receiving medical treatment or is a resident.
The patient's attending physician
may not serve as a witness.
A written request form will be
required to include an indication as to whether the patient has informed the
patient’s next-of-kin about the request for medication and an indication as to
whether concurrent or additional treatment consultations have been recommended
by the attending physician or undertaken by the patient.
If the patient complies with the
bill’s oral and written request requirements, establishes State residency, and
is found by both the attending physician and a consulting physician to be
capable, to have a terminal illness, and to be acting voluntarily, the patient
will be considered to be a “qualified terminally ill patient” who is eligible
to receive a prescription for medication. The bill expressly provides
that a person is not be considered to be a “qualified terminally ill patient”
solely on the basis of the person’s age or disability or the diagnosis of a
specific illness, disease, or condition.
If either the attending physician
or the consulting physician believes that the patient may lack capacity to make
health care decisions, the physician will be required to refer the patient to a
mental health care professional, which is defined in the amended bill to mean a
licensed psychiatrist, psychologist, or clinical social worker, for a
consultation to determine whether the patient is capable. If such a
referral is made, the attending physician is prohibited from issuing a
prescription to the patient for medication under the bill unless the attending
physician has received written notice, from the mental health care
professional, affirming that the patient is capable.
Prior to issuing a prescription for
requested medication, the attending physician is required to ensure that all
appropriate steps have been carried out, and requisite documentation submitted,
in accordance with the bill’s provisions. The patient's medical record is
to include documentation of: the patient’s oral and written requests and
the attending physician’s offer to rescind the request; the attending
physician’s recommendation for concurrent or alternative care and treatment
consultations, and whether the patient participated in a consultation; the
attending physician’s and consulting physician’s medical diagnosis and
prognosis, and their determinations that the patient is terminally ill, is
capable of making the request, is acting voluntarily, and is making an informed
decision; the results of any counseling sessions with a mental health care
professional ordered for the patient; and a statement that all the requirements
under the bill have been satisfied.
A patient's request for, or the
provision of, medication in compliance with the bill will not constitute abuse
or neglect of an elderly person, and may not be used as the sole basis for the
appointment of a guardian or conservator. The bill specifies that a patient’s
guardian, conservator, or representative is not authorized to take any action
on behalf of the patient in association with the making or rescinding of
requests for medication under the bill’s provisions, except to communicate the
patient’s own health care decisions to a health care provider upon the
patient’s request. The bill prohibits any contract, will, insurance
policy, annuity, or other agreement from including a provision that conditions
or restricts a person’s ability to make or rescind a request for medication
pursuant to the bill, and further specifies that the procurement or issuance
of, or premiums or rates charged for, life, health, or accident insurance
policies or annuities may not be conditioned upon the making or rescinding of a
request for medication under the bill’s provisions. An obligation owing
under a contract, will, insurance policy, annuity, or other agreement executed
before the bill’s effective date will not be affected by a patient’s request,
or rescission of a request, for medication under the bill.
Any person who, without the
patient’s authorization, willfully alters or forges a request for medication
pursuant to the bill, or conceals or destroys a rescission of that request,
with the intent or effect of causing the patient's death, will be guilty of a
crime of the second degree, which is punishable by imprisonment for a term of
five to 10 years, a fine of up to $150,000, or both. A person who coerces
or exerts undue influence on a patient to request medication under the bill, or
to destroy a rescission of a request, will be guilty of a crime of the third
degree, which is punishable by imprisonment for a term of three to five years,
a fine of up to $15,000, or both. The bill does not impose any limit on
liability for civil damages in association with the negligence or intentional
misconduct of any person.
The amended bill provides immunity
from civil and criminal liability, from professional disciplinary action, and
from censure, discipline, suspension, or loss of any licensure, certification,
privileges, or membership for any action that is undertaken in compliance with
the bill, including the act of being present when a qualified terminally ill
patient takes the medication prescribed to the patient under the bill’s
provisions. As amended, the bill provides that this immunity also applies
to any refusal to take actions in furtherance of, or to otherwise participate
in, a request for medication made under the bill. Any action undertaken
in accordance with the bill will not be deemed to constitute patient abuse or
neglect, suicide, assisted suicide, mercy killing, euthanasia, or homicide
under any State law, and the bill expressly exempts actions taken pursuant to
the bill from the provisions of N.J.S.2C:11-6, which makes it a crime to
purposely aid a person in committing suicide. These immunities will not
apply to acts or omissions constituting gross negligence, recklessness, or
willful misconduct. Nothing in the bill is to be construed to authorize a
physician or other person to end a patient's life by lethal injection, active
euthanasia, or mercy killing.
The bill amends section 1 of
P.L.1991, c.270 (C.2A:62A-16), which establishes a “duty to warn” when a health
care professional believes that a patient intends to carry out physical
violence against the patient’s own self or against another person, in order to
specify that that “duty to warn” provisions are not applicable when a qualified
terminally ill patient requests medication under the bill.
The bill requires a patient’s
attending physician to notify the patient of the importance of taking the
prescribed medication in the presence of another person and in a non-public
place. The bill specifies that, if any governmental entity incurs costs as
a result of a patient’s self-administration of medication in a public place,
the governmental entity will have a claim against the patient’s estate to
recover those costs, along with reasonable attorney fees.
The bill authorizes attending
physicians, if registered with the federal Drug Enforcement Administration, to
dispense requested medication, including ancillary medication designed to
minimize discomfort, directly to the patient. Otherwise, the attending
physician may transmit the prescription to a pharmacist, who will dispense the
medication directly to the patient, to the attending physician, or to an
expressly identified agent of the patient. Medication prescribed under
the bill may not be dispensed by mail or other form of courier. Not
later than 30 days after the dispensation of medication under the bill, the
health care professional who dispensed the medication will be required to file
a copy of the dispensing record with the Division of Consumer Affairs
(Division) in the Department of Law and Public Safety.
Any medication prescribed under the
bill, which the patient chooses not to self-administer, is required to be
disposed of by lawful means. Lawful means includes, but is not limited
to, disposing of the medication consistent with State and federal guidelines
concerning disposal of prescription medications or surrendering the medication
to a prescription medication drop-off receptacle. No later than 30 days
after the patient’s death, the attending physician will be required to transmit
documentation of the patient’s death to the Division. The Division is
required, to the extent practicable, to coordinate the reporting of dispensing
records and records of patient death with the process used for the reporting of
prescription monitoring information. The Division will be required to
annually prepare and make available on its Internet website a statistical
report of information collected pursuant to the bill’s provisions; information
made available to the public will not include personal or identifying
information.
A health care facility’s existing
policies and procedures will be required, to the maximum extent possible, to
govern actions taken by health care providers pursuant to the bill. Any
action taken by a health care professional or facility to carry out the
provisions of the bill is to be voluntary. If a health care professional
is unable or unwilling to participate in a request for medication under the
bill, the professional will be required to refer the patient to another health
care provider and provide the patient’s medical records to that provider.
This bill was pre-filed for
introduction in the 2018-2019 session pending technical review. As
reported, the bill includes the changes required by technical review, which has
been performed.
COMMITTEE AMENDMENTS:
The committee amendments clarify
that patients are to be advised of both concurrent and additional treatment
opportunities, as well as palliative care, comfort care, hospice care, and pain
control, when making a request for aid in dying medication under the bill.
The committee amendments provide
that licensed clinical social workers will be permitted to make a determination
as to whether a patient has the capacity to make health care decisions; as introduced,
the bill provided that only licensed psychiatrists and psychologists could make
this determination. The committee amendments additionally add a new
definition of “mental health care professional,” which includes licensed
psychiatrists, psychologists, and clinical social workers, and add a provision
requiring the State Board of Social Work Examiners to adopt rules and
regulations to implement the provisions of the bill. The committee
amendments remove references concerning the referral of a patient to a mental
health care professional if the attending or consulting physician thinks the
patient may have a psychiatric or psychological disorder or depression that
causes impaired judgment; as amended, the bill provides for such referrals when
the attending or consulting physician thinks the patient may lack the capacity
to make health care decisions. The bill removes a definition of
“counseling,” and various references to the term, that are obviated by these
amendments.
The committee amendments revise the
definition of “self-administer” to clarify that the term will not be limited to
ingesting the aid in dying medication, but will instead apply to the physical
administration of the medication to the patient’s own self.
The committee amendments remove a
provision that would have required that, if the patient is a resident in a long
term care facility, a designated staff member of the facility is required to be
one of the witnesses to the patient’s written request. The committee
amendments further provide an exception to the prohibition against an owner,
operator, or employee of a health care facility from being a witness to the
patient’s written request, to provide that this prohibition will not apply when
the patient is a resident of a long term care facility. The bill defines
“long term care facility” to mean a licensed nursing home, assisted living
residence, comprehensive personal care home, residential health care facility,
or dementia care home.
The committee amendments remove certain
language concerning when a patient has provided written consent for the
patient’s attending physician to contact a pharmacist regarding a prescription
for aid in dying medication; the bill expressly provides elsewhere that the
patient may provide such written consent when completing the written consent
form, making the additional reference to the consent redundant.
The committee amendments clarify
that the means of lawfully disposing of unused aid in dying medication may
include disposal consistent with State and federal guidelines concerning the
disposal of prescription medications or surrender to a prescription medication
drop-off receptacle.
The committee amendments provide
that, in addition to immunity from civil and criminal liability and
professional disciplinary action, a person may not be subject to censure,
discipline, suspension, or loss of any licensure, certification, privileges, or
membership for any action taken in compliance with the bill. The
committee amendments further provide that these protections also apply to the
refusal to take any action in furtherance of, or to otherwise participate in, a
request for medication under the bill.
The committee amendments clarify
that, in addition to not constituting patient abuse or neglect, suicide,
assisted suicide, mercy killing, or homicide, actions taken in connection with
a request for medication under the bill will not constitute euthanasia.
The committee amendments provide
that, in addition to not providing the sole basis for the appointment of a
guardian or conservator, a patient’s request for, or the provision of,
medication under the bill will not constitute abuse or neglect of an elderly
person.
The committee amendments provide
that the immunities and protections established under the bill do not apply to
acts or omissions that constitute gross negligence, recklessness, or willful
misconduct.